Sherril

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December 9th, 2006

01:37 pm: My Invisible Disabilities Advocate
If you're having trouble communicating about your illness with other people, or if you want to find out more about what living with a chronic illness is like, go to The Invisible Disabilities Advocate.



http://www.myida.org/




http://www.myida.org/booklet.htm

Current Mood: creative
Current Music: Printer & background TV

November 30th, 2006

12:14 pm: But You Don't Look Sick...
Lots of new stuff at http://www.butyoudontlooksick.com/ online store: http://www.butyoudontlooksick.com/. I'm asking for permission to post some of my favorites here.

Gotta go to town and see the shrink now.

Current Mood: nervous
Current Music: Nein.

November 29th, 2006

01:19 pm: Start Posting Regularly/Simple Kindness
I hereby resolve to start posting regularly to this journal.

I got unemployment benefits; more on that later.

I'm almost ready to submit my discrimination claim against DJJ for terminating me without cause.

I'm starting a home based business thing; more on that later also.

I'm looking into furthering my education so I can get a job that pays decently, that I can do until I'm at least 70.

Here's the Weekly Inspiration from ProHealth's ImmuneSupport.com CFS (Chronic Fatigue Syndrome) bi-monthly newsletter:

"Antidotes are what you take to prevent dotes."
- Anonymous

The Beautiful Simplicity of Kindness

For those of us who missed World Kindness Week this year, the Random Acts of Kindness Foundation
( http://www.actsofkindness.org ) offers kindness-inspiring ideas, materials, and guides completely free to all - individuals, groups, teachers, students. To quote a few who are already "with the program":

* Do your little bit of good where you are. It's those little bits of good put together that overwhelm the world. - Desmond Tutu

* Wherever there's a human being, there's an opportunity for kindness. You don't have to plan some big event. You can be strolling the hall in school and say "hi" to a stranger. Simplicity is the way, you know? - a student

* My religion is simple. It is kindness. - Dalai Lama

I'm checking out the website now ( http://www.actsofkindness.org ).

Current Mood: grateful
Current Music: silence

October 26th, 2006

07:55 pm: Which Disney Princess? Quiz

You Are Aurora! (A.K.A. Sleeping Beauty.)
Image hosted by Photobucket.com

Thoughtful and loving. Authority figures probably have been sheltering you all of your life. Thankfully you're a very tranquil person who is content with what life has given you, but secretly you want to know how the outside world works.


Which Disney Princess Are You?

Oh please! No really--this can't be me. I want to be Pocahontas.

07:41 pm: National Fibromyalgia Association



http://www.fmaware.org


It has come to my attention that GJ doesn't have anything like links to good fibromyalgia (FM) sites. So I'm putting the NFA up now, and will do more as time and energy permit.

Current Mood: drained
05:47 pm: I Owe THEM???
Got a letter today from DJJ in Atlanta saying I have been operpaid in wages and they want me to pay it back. They are so screwed up. Yes, I want to dispute the fact, but what are the facts? I called to ask for a detail of what kind of pay I was paid and when (because DJJ in its infinate wisdom decided sometime ago to leave those details off on the check stubs of people who used automatic deposit to their banks) and was told to get in touch with the local office for that information. The local office. That's another story of incredibe ineptitudes, in my humble experience. It will all come out in my discrimination claim.

My last day with DJJ was 8/16/06. Could it be coincidence that I just filed for umemployment and the local office just decided to put in the paperwork to the Atlanta office that they (oops) overpaid me more than $800 back in July? I think not. I think I will dispute the fact, though ... after I get the facts, that is.

What are they going to do to me if I don't get in touch with the DJJ Central Office Payroll Department within 10 days to arrange for repayment? They're telling me to pay back only the net of $599.30. What about the difference between that and the gross of $810.64? Methinks it's time to contact Jennifer Jaff, super lawyer, of Advocacy for Patients with Chronic Illness, Inc., http://www.advocacyforpatients.org/.

So. Gotta sign off and get started writing letters and faxing lawyers.

Current Mood: angry

October 24th, 2006

01:40 pm: How I Spent My Summer, 2006 OR The Story Behind my Forced Resignation from the DJJ
Many heartfelt thanks to Jennifer C. Jaff, Esq. of Advocacy for Patients with Chronic Illness, Inc., http://www.advocacyforpatients.org/ for her help throughout this ordeal so far, and for her major contribution to this document which started out as her letter to the bigwigs of DJJ in Atlanta then morphed into my application for Unemployment Compensation and will next find its way into my Employment Discrimination Complaint, all free of charge to me. Thanks also to Jennifer for suggesting that I apply for unemployment--I would have assumed I was not eligible simply because of the way DJJ phrased the reason for my termination ("... a presumptive resignation after her failure to return to work or to provide documentation supporting her absence from work".)

Also thanks to Rosalind Joffe of Chronic Illness Coach.com at http://.cicoach.com
for insisting that I organize all of the documentation of what happened, before DJJ shut my email off. Which they did as soon as they realized what I was using it for. But I had it all by then.

Last but not least, I have my mom to thank for keeping a roof over my head, food in my belly and so much more that I can't even name it all here, when I'm between jobs or too sick to work, thereby enabling me to continue to fight the good fight.

Beginning on May 19, 2006, I repeatedly requested reasonable accommodation for work that I was being required to do on loan from the DJJ office to the Department of Family and Children's Services (DFCS) office in the same building, that was triggering my chronic illnesses: IBS (irritable bowel syndrome) and FM (fibromyalgia). All of the requests were ignored, in violation of law. Eventually, my condition got so bad that I could not work at the DFCS job. I offered to get medical documentation of this fact and my boss said I should do so as soon as possible. Unfortunately, my General Practitioner felt that the documentation should come from specialists, which resulted in a delay in obtaining the documentation. (The GP referred me to a gastroenterologist and a psychiatrist.)

I kept my supervisor informed at all times in great detail about my health status. I have documentation of all that occurred, mostly in the form of emails. If one of my superiors had asked for documentation from the doctor(s) of the delay I would have been happy to provide it. But no one asked or gave me any idea that that would have helped. One specialist, the gastroenterologist, would not provide documentation without performing a colonoscopy and I informed my supervisor that the earliest possible date for scheduling this was August 10, 2006.

I was informed in a letter dated July 17 that I was “absent without authorization . . . ,” and needed either to return to work or provide the necessary medical documentation. I was unable to do either, largely because my requests for accommodation – i.e., placement in my regular job, without spending two hours a day at DFCS – were ignored. I made this entirely clear to my supervisor. Had I been allowed to perform my usual job even temporarily, until I obtained medical documentation, I would not have had to miss a single day of work. By July 26, DJJ had some medical documentation in the form of a letter from Dr. Grundfast, the gastroenterologist, dated July 21. It was DJJ that would not allow me to work while awaiting the results of the August 10 colonoscopy. At no time did I voluntarily take leave; I was absent solely because my requests for accommodation were ignored.

In a letter dated July 25, 2006, I formally requested leave under the Family and Medical Leave Act, supported by a letter from my doctor indicating that I was suffering from chronic constipation, nausea and diarrhea. This letter, dated July 21, confirmed that a colonoscopy was scheduled for August 10. Dr. Grundfast offered to speak with a representative of DJJ if DJJ wished more information, yet nobody from DJJ contacted him to obtain further information.

The Human Resources Guide for the Georgia State Personnel Board at 18.111.1 provides that a medical certification “shall indicate the extent to which the employee is able to perform the essential functions of the employee’s position. . . .” Not once did anybody tell me that this was what I needed from my doctor. Any of my doctors could have written a letter saying that irritable bowel syndrome and fibromyalgia are stress-induced. I provided my supervisor with an article about fibromyalgia explaining the relation between it and stress (http://www.fms-help.com/nervous.htm), and additional information along these lines could have been provided. All I was told on August 16, 2006, at the same time as I was fired, was that the medical certification was insufficient. If there was a specific requirement, a specific rule regarding the content of a medical certification, what possible explanation can DJJ provide for its failure to inform me of this fact?

There was good cause for the fact that I could not provide anything more than the July 21 note from my physician, and the DJJ knew it. Not only did I tell my supervisor that my doctor would not provide a more detailed account of my illness until after the August 10 colonoscopy, but my doctor also included this fact in his July 21 note.

Despite that, DJJ then simultaneously both denied my request for FMLA leave (I've talked to two lawyers who deal with these kinds of cases only, and both said they had never heard of a request for FMLA leave being denied) and fired me with the sole explanation that the July 21 doctor’s note was insufficiently detailed, something that I and my doctor both told DJJ would be provided after the August 10 colonoscopy. Due to the fact that a colonoscopy report cannot be concluded until samples of tissue have been biopsied, there was every reason for DJJ to expect that I would not be able to provide additional medical documentation by the date on which I was terminated, but that such documentation would be forthcoming.

I repeatedly sought job restructuring as a reasonable accommodation of my disability. At no time was my request for accommodation ever responded to in any way. The Americans with Disabilities Act does not require medical documentation or condition accommodation on anything other than information from any source regarding the nature and extent of the disability. I have long-standing chronic illnesses and was very frank with my supervisor about them. Further, the information I provided to my supervisor was confirmed by the July 21 doctor’s note.

DJJ has punished me severely for my doctors’ failure to provide documentation. First, my general practitioner felt that specialists should be consulted. Then the consulting psychiatrist indicated that he could not write a letter because the problem wasn’t psychiatric. Then the gastroenterologist refused to provide more than the July 21 note until after the colonoscopy, and the results of the biopsies and, thus, the report of the colonoscopy simply was not available before I was fired. DJJ personnel knew all of that and still fired me on three days’ notice, without any meaningful opportunity to appeal.

Although the Americans with Disabilities Act (“ADA”) does not protect an employee from being fired due to absenteeism that is not what happened here. I requested accommodation, and in retaliation for that request, there was no accommodation or interactive process, as required by the ADA. I was prepared to come to work every day and do the job that I was hired to do; my only request was that someone other than I be posted at DFCS because that posting aggravated my chronic illnesses, irritable bowel syndrome and fibromyalgia. To deny this request without treating it as a result for accommodation is in violation of law. One cannot tacitly deny a request for accommodation, require an employee to work without that accommodation, then fire her because she is physically unable to do so. Viewed this way, the actions of DJJ quite clearly violate the ADA.

I am a qualified person with a disability and although I function at a fairly high level, I am substantially limited in the major life activity of managing a stressful, busy and distracting workspace. Although I can work well without constant distraction, and I understand that some distraction exists in every workplace, the DFCS workplace involved four telephone lines; many clients coming to the window in person; reviewing, accepting and logging appointments and documentation such as applications for food stamps, Medicare, and child care on a computer, etc.; all at the same time. I did my best at this position until I became symptomatic. At that point, I initiated an interactive process, as required by the ADA; I was not met with the same spirit of cooperation that the law requires.

The results of the colonoscopy show that I had diverticulitis as well as ongoing and painful irritable bowel syndrome. Based on this report, which now is available, my disability should have been accommodated. I now can show that I am substantially limited in the major life activity of disposal of bodily waste and managing stress. Based on this showing, it would have been appropriate for the DJJ to approve my request for reasonable accommodation and job restructuring. Unfortunately, they never even saw the report because they fired me immediately before it was available.

I'm just tired of being walked on by Georgia employers. I had two part time jobs before this job at DJJ, and both of them ended for similar reasons: the employer refused to comply with the ADA reasonable accommodation process. I was even told by a state vocational rehabilitation counselor that there was simply no one to enforce the law. The fact of the matter is that I have to step up and take responsibility for what happened by filing a Discrimination Complaint, and that is how the law is enforced. I hope. If you care to follow me through this process, sign up to be notified whenever I post a new entry to this journal.

I'm also angry because I am a person with chronic illnesses who wants to work and who is trying to work, instead of filing for Social Security Disability and living off of the government for the rest of my life, and I'm being beat down every way I turn. It's like it's not bad enough that I have to live with several concealed illnesses where everyone wonders what's REALLY wrong with me since I look Just Fine (http://www.writefaceforward.com/), but I have to keep fighting for what's right and what's the law also. So. Nobody ever said life was fair.

Stay tuned for future exciting episodes in the Saga of Sherril's Life and Career. And don't worry about this being an angry tirade throughout--I'm channeling my anger into this writing and I usually stay pretty upbeat.

:~*~:. .:~*~:. .:~*~:. .:~*~:. .:~*~:. .:~*~:

"Be kind, for everyone you meet is fighting a hard battle."

-Plato (c. 427-347 BC)

:~*~:. .:~*~:. .:~*~:. .:~*~:. .:~*~:. .:~*~:

Current Mood: tired

March 9th, 2005

03:53 pm: Wednesday
Got home from sister's house Sunday. Left a day early because Mom was sick. I live with my Mom. So I drove all the way home & that was nice. It was a beautiful day, most of the drive is on country roads, and I didn't have any undue pain from sitting for the three hours the trip took.

Got back to water exercise Monday; started coming down with Mom's crud (I guess--don't know anyone else who's sick) on Tuesday. So today I'm taking it easy.

Back to the task at hand. I filed for disability once before about two years ago, using my big 3 helath issues of FM, endometriosis, and depression as the reason I was not able to work. I did not appeal the denial because I was not able to believe that I would not be getting back to full time work, soon. I filed that original application on the advice of my counselor at the Vocational Rehabilitation Services office. She said to do it "just in case". I cried buckets until she finally said "OK, OK, you don't HAVE to do it!" I so did not want to have to go this route. That was late 2001 or early 2002.

In trying to figure out the date of the original application, I can see that I was in no condition to be filling out paperwork. This is the best I can figure what happened when. Sometime before November of 2002, I called the SS number and started an app. verbally. But I've had so many jobs and doctors that the phone operator and I decided that she should send me the partially filled out app. and I would finish filling it out from my records. (And I wasn't even trying then to go back all the way to the year I was first diagnosed, in 1989.) So she sent it and I didn't finish filling it out until around 4/15/03. On 4/24 they sent me a request to fill out a Daily Living Questionaire, and a request for more Work History information, going back 15 years. I think I sent those in on 6/30/03 and 6/27/03, respectively.

Then they sent me an appointment with a psychologist, for an exam to evaluate my "nervous condition". I remember that appointment being somewhat difficult at first. The psychologist's questions seemed vague. But we got into a rhythm and it seemed to go OK. As I was leaving the office I remember looking back when I got to my car and he was watching me. The fact that I was able to drive myself to the appointment had seemed to be a big deal to him. And I didn't have any limping going on that day. Whatever. They turned me down in a letter dated 7/10/03.

Enough of that ancient history. Since then I've been doing some research on the internet on filing for disability with FM being the only reason. I've finally got enough perspective to see that what's keeping me from working FT is the FM. I found what I consider to be excellent information at http://4socialsecuritydisability.com/. From there I got to a page about FM in particular, http://4socialsecuritydisability.com/fibromyalgia_strategies.htm. then I went to his info on his "how to" Social Security help book - the Disability Answer Guide (how to fill out adult Social Security disability forms) at http://www.disabilityforms.com/. I got all the free stuff he (Jonathan Ginsberg) was offering, and I liked it. I was going to order the book on disk for $100, then I started thinking: He's in Atlanta. I'm in SW Georgia, but might be in Savannah by the time the mess is over, so what if he's 3 hours away? I wondered how/if I could get HIM for my lawyer... so I called 'em up and they sent me the paperwork to sign to make him my lawyer, among other things. And the paralegal I spoke to told me if I was going to use Mr. Ginsberg as my representative, I wouldn't need the book. I could just call them and ask whenever I had questions.

So all that was background for me to write about the phone call I made today to Ginsberg's office. It's long distance and I don't think they have an 800 number (need to ask next time I call). My question was about my work history. I read somewhere about someone getting denied because they forgot to list one of their jobs on the app. I've had a lot of jobs and I've been worried about missing one (or more). I had been working from my tax returns last week, but I got back to 1997 and didn't have any more tax returns. My husband & I split for the first time in 1997; I was thinking that he might have all the returns before that. So I asked the paralegal if there was a way I could get a list from SS or someplace, of all the jobs I've paid taxes on back to 1989. She didn't know. We decided I should call SS and ask.

Before getting on the phone with SS (the para warned me to "be patient"--I assume that means you might have to wait a long time), I decided to go look in the garage and see what kind of records I have out there. Lo and behold, there are my tax records back to 1994. I think I can remember before that because I wasn't moving around that much then.

*Note to self: When going back to the report I already started, remember to fill in one of the options under "Where do you want to return to"--fill in one of those circles! Otherwise you just keep going round and round, never getting to your report!

Well, I'm having a lot of pain in my right wrist and forearm. Guess I've done enough for today. Tomorrow's another day.

Current Mood: pensive
Current Music: Silence

March 4th, 2005

04:44 pm: Friday
I got a couple of pages entered before the secure/non-secure message came up. I said no this time when it asked me if I wanted to display non-secure itmes and I got an "Action Cancelled" screen. I also read the "More Info" option. It seems to have something to do with the fact that this government site uses both secure and non-secure pages, and my sister's computer doesn't like that. Guess I'm finished with this until I get back home. If it doesn't work on my computer I'll find out what I need to do to fix it so it will, but I don't want to bother on someone else's computer. And I have a headache.

Current Mood: frustrated
Current Music: Balto III movie

March 3rd, 2005

06:48 pm: Thursday
Got a late start on online application. Running kids here & there, feeding them & cleaning after them. Finally got on computer about 4 pm, while kids are watching Sponge Bob The Movie. Completed 3 or 4 pages, losing each one at least once due to some technical problem I don't understand; a little box comes up about Secure and Non-Secure Items, it asks do you want to display non-secure items? When I say Yes it goes to the classic Internet Explorer screen "The Page Cannot Be Displayed". Whatever page I was working on is lost. So I'll try saying No next time. Then the power flickered on and off once and everything shut down. And the Sponge Bob movie plays on. It finally ends and they play the "Goofy Gober" song over and over and over and over... You get the picture. So I got maybe 5 pages done and have to give up or risk losing my sanity. Also my resume did not copy to the CD that I brought for some reason (oh, duh!--the disk is full), and I need it for the description on the online app. So. Tomorrow's another day.

Current Mood: irritated
Current Music: Sponge Bob Square Pants--The Movie

March 2nd, 2005

02:04 pm: Tuesday afternoon
I finished the "About You" section of the report, and entered my jobs back to 1997 in the "work History" section. This is just the job title and dates. I still have to do all the descriptions. I've had way too many jobs in my short life. I'm 48. I'll have to finish the Work History section to get a final count. I don't even know. I've quit more good jobs than most people will have in their lifetimes. I've been trying to figure out why that is during the down time I've been forced to take since 2001. I have a couple of theories formulating. I'll write them when they get more fully perked.

My neck hurts and I need to get ready to pick the kids up from school.

11:31 am: Wednesday
I'm at my sister's house keeping her kids while she goes to a workshop in Atlanta for her job. I got here last night and will stay until Monday.

I've been researching and thinking about filing for disability (or more accurately, how to avoid it) for awhile now. I actually applied once before but did not appeal the denial. I kept hoping I was going to get back to working full time. And I didn't know until recently that you can file if you are able to work part time, as long as you don't make over $600 per month.

So. the time has finally come. I'm going to use the new online application (www.socialsecurity.gov/disabilityreport). I started that before the holidays. There's a six month deadline before they delete your info, so there's added inspiration to get it done.

Current Mood: calm
Current Music: Indigo Girls "live at the uptown lounge"
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